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Statewide and Nationwide

Caregiver, Huntington's Disease

An organization whose primary mission relates to Huntington's Disease caregiver advocacy, education, or direct support programs to address caregiver specific needs. Many organizations provide limited caregiver support alongside programs aimed at patients, but are not caregiver focused organizations.

Caregiver, Huntington's Disease

Family Caregiver Alliance
101 Montgomery Street, Suite 2150, San Francisco, CA, 94104
Main: (415) 434-3388 Toll Free: (800) 445-8106 Fax: (415) 434-3508

Caregiver, Huntington's Disease

HDYO (Huntington's Disease Youth Organization)

Respite Care

Temporary care provided in the home or at another location for someone needing assistance with daily living activities to allow a break for the usual care provider.

Respite Care Support

ALS Association, DC/MD/VA Chapter
1275 K Street NW , Suite 250, Washington, DC, 20005
Main: (301) 978-9855 Toll Free: (866) 348-3257

Respite Care

Camp Holiday Trails
400 Holiday Trails Lane, Charlottesville, VA, 22903
Main: (434) 977-3781 Fax: (434) 977-8814

Respite Services for Individuals with Disabilities

Easter Seals UCP
900 Camp Easter Seals Road, New Castle, VA, 24127
Main: (540) 777-7325 Fax: (804) 633-6203

Respite Camps

Muscular Dystrophy Association
161 N. Clark, Suite 3550, Chicago, IL, 60601
Main: (833) 275-6321