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Statewide and Nationwide

Health Condition and Care Advocacy

Organizations that are dedicated to protecting and improving the quality and affordability of health and long term care for all individuals and advocating for changes in the health care system that will achieve these goals; or which advocate more broadly for legislation and other measures that have a positive impact on public health.

Brain Tumor Advocacy

The Brain Tumor Foundation
1350 Avenue of the Americas, Suite 1200, New York, NY, 10019
Main: (212) 265-2401 Fax: (212) 489-0203

Cerebral Palsy Advocacy

United Cerebral Palsy Association National
1825 K Street NW Suite 600, Washington, DC, 20006
Main: (202) 776-0406 Fax: (202) 776-0414

Ostomy Advocacy and Information

United Ostomy Associations of America
P O Box 512, Northfield, MN, 55057
Main: (703) 802-3457 Toll Free: (800) 826-0826

Minority Health Resource Center

United States Department of Health and Human Services
P O Box 37337, Washington, DC, 20013
Main: (240) 253-2882 Toll Free: (800) 444-6472 Fax: (201) 251-2160

Health Education and Health Care Advocacy

Virginia Area Health Education Centers (AHEC)
1010 East Marshall Street, Suite B1, P.O. Box 980535, Richmond, VA, 23298
Main: (804) 828-7639 Fax: (804) 828-5160

Home Health Care Advocacy

Virginia Association for Home Care and Hospice
P O Box 2103, Midlothian, VA, 23113
Main: (804) 285-8636 Toll Free: (800) 755-8636 Fax: (804) 288-3303

Hospice Advocacy

Virginia Association for Hospices and Palliative Care
P O Box 70025, Richmond, VA, 23255
Main: (804) 740-1344 Fax: (775) 599-2677

Long Term Care Information and Advocacy

Virginia Health Care Association
2112 West Laburnum Avenue Suite 206, Richmond, VA, 23227
Main: (804) 353-9101 Fax: (804) 353-3098

Advocacy for Hemophilia and Inherited Bleeding Disorders

Virginia Hemophilia Foundation
410 N. Ridge Rd. Suite 215, Richmond, VA, 23229
Main: (804) 740-8643 Toll Free: (800) 266-8438

Healthcare Advocacy

Virginia Hospital and Healthcare Association
4200 Innslake Drive, Suite 203, Glen Allen, VA, 23060
Main: (804) 965-1209 Fax: (804) 965-0475

Women's Health Advocacy and Information

Women's Health Virginia
1924 Arlington Boulevard, Suite 203, Charlottesville, VA, 22903
Main: (434) 220-4500 Fax: (434) 220-4545

Patient Support, Amyotrophic Lateral Sclerosis (ALS)

An organization whose primary mission relates to Amyotrophic Lateral Sclerosis (ALS) patient advocacy, education, or direct support programs to address patient specific needs. These organizations may peripherally participate in other activities like legislative advocacy, but patient support is their focus. Programs that help individuals navigate through the maze of the health care system. Personal health care advocates are trained health care workers, often nurses, or volunteers familiar with the health care system who work independently of any health care institution.

Patient Support Chronic Diseases

Accessia Health
P.O. Box 5930, Midlothian, VA, 23112
Main: (800) 366-7741 Fax: (804) 744-9388

Patient Support, Amyotrophic Lateral Sclerosis (ALS)

ALS Association
1300 Wilson Boulevard, Suite 600, Arlington, VA, 22209
Main: (800) 782-4747

Patient Support, Amyotrophic Lateral Sclerosis

Canine Partners for Life
334 Faggs Manor Road, Cochranville, PA, 19330
Main: (610) 869-4902 Fax: (610) 869-9785

Patient Support for ALS

HealthWell Foundation
20440 Century Boulevard, Germantown, MD, 20874
Main: (800) 675-8416 Fax: (800) 282-7692